In the excitement that is building in my house, I find comfort. The crackle of Christmas energy has arrived with much anticipation on the part of two young men that also lay claim to this house -- this home. Christmas this year, in reality the whole year, has been such a growing experience for the entire brood. We have held fast and have managed to come out of the learning curve all intact.
The lack of financial resources has made the traditional gift giving experience, well, an experience. We have learned ... or in some cases relearned ... that it is not about the material items that are exchanged, but the spirit in which the love is renewed.
This is not to say that the gifts that will be exchanged aren't welcome. They are. What began as a meager fare, has increased fourfold due to the charity of others. The traditional children's dance around festive packages, amid ornaments and other holiday paraphernalia, has reached an almost frenzied state. Corners of packages have been carefully lifted and then hurriedly stuck back down -- an attempt to glimpse the forbidden fruit. It seldom works, but does add to the fever of the holiday.
Calls have been made to reach out to others that may be in need of Christmas cheer, and invitations extended to those who have not found a corner of cheer. In our shifted focus, we have found the true meaning of the season ... the great gift of sharing love, and a renewed sense of the greatest gift to us all. That is, the love of an almighty parent, creating a life that will grow into the greatest earthly giver of love and compassion.
Merry Christmas to all.
Thursday, December 24, 2009
Monday, December 21, 2009
Ok -- went to dr today. Got so many meds -- my head is spinning. Albuterol is not a good thing to inhale right before bed time, and combined with prednisone also not good.. Got even more new meds today -- no telling what they are doing. I am still wheezing and short of breath. My head says I am tired, but my body is buzzing and is really winning the race. Also, having butter pecan ice cream in the freezer is really baaaadddd. Thank goodness I have kids who had destroyed most of it.
It is past bed time, and I am just buzzing along. Mark made me come upstairs at 10 -- silly him ... so afraid that being in the basement will make me sicker. I was decorating the downstairs Christmas tree with Patrick. I love my Mark and how he takes such good care of me -- even times when I resist. Btw, the dr said I may have COPD -- blech! Like I need one more thing wrong with me. Let's count them -- copd -- maybe, fibromyalgia, arthritis, fat, depression, lichen planus -- and who knows what else. Kind of like the weather here in St. Louis, wait around for a few minutes and it will change.Here's a new fact for you: lichen planus (I have the oral kind -- google it, it's disgusting) causes a metallic taste in your mouth. The taste kind of reminds me of blood, only it doesn't really go away.
To top everything off, I have a meeting with Patrick's "team" at school the Thursday of the week he goes back. I am dreading it. I caused the ball to be in motion; I feel that Patrick's IEP is not being followed in his math class.
Oh -- funny thing -- my dog Walter (remember, he only had 3 legs) has been sleeping on the couch. His head slowly fell of the pillows he was using, which eventually woke him up. He just spent the last few minutes trying to use his front leg to rearrange the pillows. (The red ones we bought a Carrie and Suzie's yard sale.) He laid down again, obviously not comfortable. So then he tired doing the doggy waling in a circle thingy and plopped down again. Still wasn't comfortable, so he got up again. and tried moving the pillows around with his mouth. You guessed it, it still wasn't what he wanted. So he moved to the other end of the couch, and just stared longingly at the pillows. He couldn't take it, so he gets up again and tries to move the pillows with his head -- like trying to pin one down with his one front leg, stay upright, and move the other pillow all at the same time. I finally felt sorry for him and fixed the pillows for him. He is now in a little ball, only on one pillow. I am thinking it is because the other one has too much dog slob on it. Poor three legged baby. No pics, of course because the camera would be in the bedroom, where people with good sense are sleeping.
It is past bed time, and I am just buzzing along. Mark made me come upstairs at 10 -- silly him ... so afraid that being in the basement will make me sicker. I was decorating the downstairs Christmas tree with Patrick. I love my Mark and how he takes such good care of me -- even times when I resist. Btw, the dr said I may have COPD -- blech! Like I need one more thing wrong with me. Let's count them -- copd -- maybe, fibromyalgia, arthritis, fat, depression, lichen planus -- and who knows what else. Kind of like the weather here in St. Louis, wait around for a few minutes and it will change.Here's a new fact for you: lichen planus (I have the oral kind -- google it, it's disgusting) causes a metallic taste in your mouth. The taste kind of reminds me of blood, only it doesn't really go away.
To top everything off, I have a meeting with Patrick's "team" at school the Thursday of the week he goes back. I am dreading it. I caused the ball to be in motion; I feel that Patrick's IEP is not being followed in his math class.
Oh -- funny thing -- my dog Walter (remember, he only had 3 legs) has been sleeping on the couch. His head slowly fell of the pillows he was using, which eventually woke him up. He just spent the last few minutes trying to use his front leg to rearrange the pillows. (The red ones we bought a Carrie and Suzie's yard sale.) He laid down again, obviously not comfortable. So then he tired doing the doggy waling in a circle thingy and plopped down again. Still wasn't comfortable, so he got up again. and tried moving the pillows around with his mouth. You guessed it, it still wasn't what he wanted. So he moved to the other end of the couch, and just stared longingly at the pillows. He couldn't take it, so he gets up again and tries to move the pillows with his head -- like trying to pin one down with his one front leg, stay upright, and move the other pillow all at the same time. I finally felt sorry for him and fixed the pillows for him. He is now in a little ball, only on one pillow. I am thinking it is because the other one has too much dog slob on it. Poor three legged baby. No pics, of course because the camera would be in the bedroom, where people with good sense are sleeping.
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